Lily's journey to now
I decided to write this summary of the events of Lily's short 5 years of life to bring a little more context to those who are trying to piece together the recent events and what brought her to our hospital trip earlier this week. (I am writing this having had very little sleep over the last 3-4 days so please give some grace in regards to grammar, spelling, etc. as you read on!) I wasn't sure how much I should share or wanted to share since this is Lily's journey. I know my girl and I really believe that she would share all of it with anyone who wanted to know her story. She is the most loving, sweet and joyful child I have ever met even despite all the trauma she has suffered. I have had many conversations with Lily about why she is in the hospital now and that we are communicating with all of our family, friends, church family, school friends, neighbors, etc. about all that is happening and how everyone is thinking about her and praying for her. She is very aware of all o...